Hands and house

Hands and house

Tuesday, January 25, 2011

Update on Little Miss Georgia Mei

      Thank you guys so much for writing and asking about Georgia! We are still slogging through medical appointments to figure out what is going on with her. She seems to be doing well and we just could not love her more. So man times we are stopped by people who say, "There is just something about your little girl" and I just smile because she is a pure, undeserved miracle in our lives. Doug was just saying last night that every time he sees her it is a reminder that God's plans are so much bigger and better than our own.

So where are we at? This is what we know so far:

* She is still having funky episodes and we are trying to figure out what they are.

* Her heart is stable right now. Her pulmonary valve is slowly failing and there is more 'gunk' (scar tissue) in her pulmoary artery than they would like to see....but the doctors have said that it is best to wait as long as we can before repairing any of it because the older she is the better she would do with the surgery or heart cath.

* It is still possible that the episodes are seizures. Her sleep deprived EEG came back showing normal brain waves (Yippee!) which makes her case less urgent. We will meet with a Neurologist in a few months to figure out what next steps need to be taken. They are switching to electronic files right now so we are still waiting to hear when her appointment is.

* We are trying her on some reflux medicine as a shot in the dark....maybe it is reflux? She has a great appetite and eats pretty much everything including lots of spicy foods so the doctor is not sure that this is it but it is another thing to rule out!

* As she is getting older and more verbal she can now tell me when it happens. She tells me "My chest hurts Mama." while patting right ontop of her sweet scar. Then about 30 seconds later that "It feels all better."....and I keep praying for some kind of answer.

* We meet with the doctor again next week to keep figuring it all out! I would love to find something difinitive but also know that in some ways it is a gift to daily be reminded that my children are in God's care far before they are in mine and His is SO much better.

* She is a giggly, cuddly bunch of joy who comes running to me about a billion times a day with her arms stretched out saying, "I love you Sooooo much!".....and I feel so beyond blessed to be her Mama.

Thanks for all of your prayers. It is funny how much a part of daily life it all is now. God has been so gracious in giving us peace in the midst of the unknown. We are trying hard to keep our eyes fixed on Him!

The heavens declare the glory of God;

the skies proclaim the work of his hands.

Day after day they pour forth speech;

night after night they reveal knowledge.

They have no speech, they use no words;

no sound is heard from them.

Yet their voice[b] goes out into all the earth,

their words to the ends of the world.

In the heavens God has pitched a tent for the sun.

It is like a bridegroom coming out of his chamber,

like a champion rejoicing to run his course.

It rises at one end of the heavens

and makes its circuit to the other;

nothing is deprived of its warmth.
Psalm 19:1-6


Sharon Ankerich said...

I was wondering but didn't want to come out and ask. Thought you would share when you were ready. Thanks! So glad things are going well and maybe getting more answers soon. We have a heart cath scheduled for Feb 11 for SJ~ her cardiologist sees her right PA with a little more blockage than last appt so we move forward. Praying for a good report and safety!
Blessings to you all!

Cedar said...

Thanks for sharing! I have been wondering. It is nice to know what to pray.

Ben and Rach said...

Good to have an update and great pictures of your trip! We will continue to pray for Georgia!

Marci said...

Thinking of you! Hugs

Renee said...

Thanks for the update, Shannon. I will be keeping Georgia in prayer.

Valerie and Jeff said...

I've been thinking about little Miss Georgia a lot these days ... I'm working on her apron dresses FINALLY! I have the pink/peach one done and hope to get the other one going faster than this one (whew!) I'm outta practice with these!
Continuing to pray for her and for answers with her heart. She is just THE SWEETEST thing!--so thrilled about your trip and your thankful heart for all your blessings new and old.
You inspire!

Curtis and Deneen said...

Thank you for posting on my daughter's (Sharaya's) blog! I recognized you right away because I have been following your blog for a few months, and have been praying for Georgia. We are both, now, following Ravenna's blog, too. What a sweetie!

Still praying along with you, and enjoying your blog.


Susan A said...

Thank you for letting us know how little Georgia is doing. I love how she is your little blessing :)

I have been praying for her and will continue to do so. For her little body to be strengthened and for wisdom for doctors to find out exactly what's causing the seizures. For rest and healing in her body.

Thank you again for the update :)

Jewels of My Heart said...

Praying for your sweet little Georgia. Praying for God's healing my friend and for the doctors to have wisdom and discernment, that Jesus will lead them to what is going on.
Love you,


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