Thank you SO much for praying and for your kind words...
Parker with his latest invention!
We are definitely on a journey with our little guy,
grieving a lot and learning anew how to surrender and trust
that God is GOOD in the midst of this.
We are praying hard for complete healing of his vision
and also seeking the best medical help we can find.
Already God has been so faithful in coming near and encouraging us, showing us that we are not alone.
Last Monday I talked with Dornbecker (a Children's hospital in Portland, OR),
the intake gal said,
"I hate to tell you this but the Retinal Specialist are now scheduling appointments for 2013"
How could that possibly be? Some of the conditions that fall under Retinal Dystrophy can progress to blindness in 6 months.
If Parker is losing his vision we want to know so that we can pack everyday full of sights that he will never forget!
So again we wept and cried and prayed.
Two days later, I got a call from another lady from Dornbecker...
saying she looked at the schedule again and if we would be willing to do the visit in 3 seperate chunks she could get the testing done by July 9th!
So...next week will be a big one.
July 3rd Parker will go in for a comprehensive visual field test.
July 5th he will have an ERG (electroretinogram)
July 9th we will meet with the Retinal Specialist and a Genetic Counselor!
It is a scary road but we are SO thankful to be on our way at least to initial answers so quickly!
Thanks again for praying!!! Please keep it up!!!!