we were in such a fog for Ravenna's appointment but the Hematologist was super prepared! She came in with a whole list of the tests they have run and talked us through it all. Basically we went from the last appointment where they said her blood disorder was rare and serious to them now saying it is mild to moderate. They still do not know exactly what it is and we will do a few more tests to try to determine it but she said, "this should not curtail your life at all". She needs to avoid contact sports and we do need to watch for muscle, brain and internal bleeding but not joint bleeds! We finally feel like we have a handle on what is happening and what to look for and it is such a relief!
Dressing up like Parker!!!!
Our friend Andrew made literally a miraculous recovery and the day after the last post he was taken off the ventilator and breathing on his own! He is home now and recuperating in his own cozy house!
It is amazing after you walk through a storm how wonderful the calm feels!!!!
God carried us all the way and we are beyond thankful!