Hands and house

Hands and house

Wednesday, November 23, 2011

Our Little Girl's Heart

Georgia's appointment was good and hard at the same time. I always go in hoping for answers and that they will see what we have been seeing and this time they did. 


Basically, her pulmonary valve is reverting back to what it was pre-surgery. It is still better than the surgery in September but the Cardiologist said that these cobbled together pulmonary valves (she doesn't really have one, it is made of dacron sewed into the nubs that should have grown into pulmonary valves when her heart was forming), are very elastic and sometimes do this. 


So, he said she needs a pulmonary valve replacement "pretty soon". The problem is she is growing so slowly and is not big enough to have the surgery via catheter (versus open heart) yet. 



He thinks she is have heart rhythm issues so we are doing another monitor to try to catch what exactly is going on. After the monitor (whether we catch anything or not), he is starting her on some medication that will help her heart to squeeze better and should help with the rhythm issues. 



Then we start meeting every 6 months or sooner "if something wild and crazy happens" to see how her heart is holding up. 



   In the grand scheme of things there are parents with heart children who walk through so much more than this. Even knowing that, it is so hard to know that her hear is struggling and that she is now an "atypical" Tetralology of Fallot patient needing more intervention and care....I have to remember that the Lord is the one who holds and cherishes her heart with everything in Him...and mine too.
 
Psalm 34:18
The LORD is close to the brokenhearted and saves those who are crushed in spirit

10 comments:

Kristina said...

I am grateful that you were able to pinpoint the problem, but so sorry that there is more surgery in the future. Your family, especially Georgia, remains in my thoughts and prayers.

Caree said...

Just caught myself up with your sweet little Georgia girl. You are an amazing family and I will keep you in my prayers.

TanyaLea said...

Oh sweet friend ~ I am bringing precious Georgia Mei back up to the top of my prayer list. Oh how I love that little princess of yours! I love the scripture you posted, and I am standing on it in 'literal' form {broken-hearted} as well. Trusting Him who is able to do more than we could ever ask or think, to move in a big way for your precious girl, in Jesus' name! Glad for answers, as now we have specifics to pray for and trust He will move mountains.

Love and hugs to her mama!!

OXO,
Tanya

Renee said...

Oh, Shannon...I am so sorry to hear about Georgia's valve problem and the up and coming surgery to replace it. It is good they found out what is going on...but the ongoing struggle for Georgia and stress for all of you must be difficult. You are all in our prayers.."on my list". Have a beautiful Thanksgiving.....Hugs to you~

Ben and Rach said...

So sorry she has to have another surgery! I will pray that her heart rhythyms are normal and that she grows quickly so they don't have to do open heart!

Susan A said...

(((hugs))) I was reading Renee's comment above and it shared what I was thinking/feeling for you.

Tami and Bobby Sisemore Family said...

hugs and prayers

Carla said...

so sorry that you're facing more problems. :(

Jolene and Dan Powell said...

So sorry to hear this Shannon. I'm just catching up on some blogs. I was surprised to see how grown up sweet Georgia is getting! You are all in my prayers!
Jolene

Jewels of My Heart said...

Praying for little Georgia's healing and for our Jesus to comfort her, her family... He is with you my friend, and He holds your baby girls' heart in His healing hands.....
God's healing....
Love,
Daleea

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