Well, these spells have started and she breaks out in a soaking wet sweat, gets super pale, has a hard time breathing and arches her back. The cardiologist is really concerned and is overnighting a special monitor that we will have to carry everywhere for the next month. Each time she has one of the episodes we will have to use the monitor on her and it will link to cardiologists who will monitor it 24 hours a day.
They are thinking she is having arrythmias which means that her heart beat is out of sync. This is tolerable for someone who has not had open heart surgery but very dangerous for a child who has had a surgery to repair Tetralogy of Fallot.
I don't know how to feel exactly. I am scared. I watch Georgia running around our yard and the idea that we may be facing something major just feels completely surreal. My heart just hurts and I want to ignore all I have learned today.
Would you pray for us?
* For Georgia's heart, that this monitor would capture what is going on so we could fix it.
* For protection of her heart.
* For us to stand in trust and confidence of what God can do rather than in fear of what 'could be'
* For protection over Ravenna and Parker as we figure this out. I have not figured out how to explain that we will be taking Georgia's shirt off and attaching wires and monitors to her in public if she has a spell or how to explain any other part of it...
Trying hard to claim this verse that God spoke to me for Georgia far before she was even born:
"Trust in the LORD with all your heart
and lean not on your own understanding;
in all your ways acknowledge him,
and he will make your paths straight."
Proverbs 3:5-6
I love this girl so much that it hurts...
33 comments:
Praying again for you, Georgia, and family. Is her cardiologist up in Seattle or was Childrens' just where her surgery was?
So, so, so many prays..
Cedar,
Thank yo so much...yes her Cardiologist is in Seattle, actually at Children's. They are sending us this monitor so that we can start using it right away rather than treking up and trying to get an appointment...then, depending on what they find, they will tell us next steps, possibly surgery again :(
Oh Shannon.....we will be praying! Keep us posted!
just this week I read the following
"Prayer can do whatever God can do. His resources are available to you. Twenty times in the New Testament it says, "Ask."
Lifting your family up in prayer and ASKING for healing without surgery!
~Erin
Well, I'll continue praying and praying. We live in Tacoma. Don't know if that can help you, but if it can let me know. If you do end up in Seattle maybe we could bring you a meal at Childrens' or something.
oh gosh, this hurts me to hear this. praying so hard for sweet little Georgia. and for you. hugs and love.
Praying Shannon!!
Praying for you and your precious family. Our God is mighty to save! May the Lord give you the strength you need during the moments you need it and peace at all times.
This Proverbs verse is one of my very favorites. (On my blog header) My prayers are with your sweet sweet girl. He loves her so so much too.
Nancy
Oh Shannon.... we are praying!!
I will be praying for Georgia, asking God to heal her precious heart. Praying for strength for you and your family.
Shannon, we are PRAYING!!!! Did you see the fast and prayer day that Linny, from A place called Simplicity, had? she's going to do it again. She welcomed prayer requests from everyone and we all prayed for each other. It was a great day, so many prayers answered. Watch for her next one!
adding Georgia to our special intentions in church.
" Lord, I come to you today on behalf of Georgia and her family. Lord you are the master healer and we are trusting that you will take care of these problems with this sweet girl. I pray for this family who needs your guidance in this situation. Lord thank you for the blessing of Georgia. I pray for the whole family during this trying time. God be with them in a way that only you can. Amen"
" Lord, I come to you today on behalf of Georgia and her family. Lord you are the master healer and we are trusting that you will take care of these problems with this sweet girl. I pray for this family who needs your guidance in this situation. Lord thank you for the blessing of Georgia. I pray for the whole family during this trying time. God be with them in a way that only you can. Amen"
Shannon,
We are praying for sweet little Georgia and your family. We are believing for protection for Georgia's heart and strength for you to endure the weeks ahead.
I am SO praying!!! I can well imagine how scared I would be~ as a matter of fact, it sounds exactly what Jing's Tet spell was like that morning. I will be praying the monitor tells them EXACTLY what God already knows!!! Bless you today!
Rom 15:13
PRAYING for you all and especially your Georgia!!! Keep us posted! I pray that the monitors will help the doctors SEE what is going on and that they will be given the knowledge and wisdom to know how to help her heart.
So VERY many prayers to God for you!!
Hugs,
Valerie
Will definitely by praying! She is such a sweetheart!
Praying, Shannon! Much love to you all.
praying for Georgia!
That is very scary! She will definitely be in my prayers.
Praying for your family. Your blog has been a blessing to me.
Shannon - we will be praying for Georgia and your family. Hang on to the verse the Lord gave you - blessings to you and your family. Linda
So many good thoughts for you and Georgia.
I will be praying for your sweet Georgia. I know that her little heart is fully in God's hands.
praying for georgia right now!
erika p.
Oh Shannon! I'm so sorry to hear that...it hit me in the gut. The uncertainty of what's going on must be just brutal. I'm hurting for you. I will for sure keep you in my prayers!!!
Jen Weis
praying. Hold fast sweetie. He will not let go. jeremiah 29:11 personalized...for I know the plans I have for Georgia. Plans to prosper her and not to harm her, plans to give her HOPE and a future!
love,
Holly
Ben and Heidi and I are praying everyday!!!
Love,
Chandra
OH Shannon. I am so sorry.
Praying down South for sweet Georgia and your entire family. Please keep us posted on how to specifically pray.
I wore this monitor for a month. It comes with either a Fanny Pack or a Backpack, so it's not really obvious. When she has an attack, you will have a way to record...a portable EKG. No strips come out, but with mine I had to call mayo Clinic and hold the phone near the box. It is great technology that allows them to immediately see what is happening and also allows the Cardiologist to see every episode for comparison, etc. I will be Praying for ALL of your family!
Hugs ~ JO
I am so behind on my blog reading but I just read this and I'm praying!!!!!! Hugs!!!!
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