Yep, that would be superpower, superhero watches that he drew all over himself that give him more "sweet moves"
So...life is never dull around here...and I find that much of my heart is filled up with 'background' prayers for our kid's health that sometimes come screeching to the forefront leaving me very raw and broken before God. I'm not exactly sure what to say about all of it. I used to try to "figure it all out" but am learning that sometimes the very best thing is to stay close to God, pouring out that very raw stuff in my heart and us letting myself 'be' in His presence...learning that it takes time to heal.
So, when I have moments of quiet I find myself soaking in this:
“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.”
Georgia had been funky episode free for a few months now, Ravenna was nosebleed free for about that time as well and the biggest things on our agenda were what to do with our beautiful sunny days. Then wham, in two days Ravenna started having nosebleeds and Georgia started grabbing my hand and pulling it to her chest because of "Funny Boom Booms" that I could feel right through her chest. She has had some every day since and we have another heart monitor on it's way in the mail.
Taking care of her sister...they chose to do this all on their own not long after one of her spells
None of it has been huge stuff, but it brings back the fact that our kids are just fragile. Really, life is so fragile whether their are health conditions involved or not. And for the past few days that has just weighed heavy on my heart. Their is an incredibly painful part of that reality, I do not control the days of those that I love. I do not get to choose how long I have them or even what they have to walk through while they are here. I want to. I so desperately want to.