Thank you SO much for praying and for your kind words...
Parker with his latest invention!
We are definitely on a journey with our little guy,
grieving a lot and learning anew how to surrender and trust
that God is GOOD in the midst of this.
We are praying hard for complete healing of his vision
and also seeking the best medical help we can find.
Already God has been so faithful in coming near and encouraging us, showing us that we are not alone.
Last Monday I talked with Dornbecker (a Children's hospital in Portland, OR),
the intake gal said,
"I hate to tell you this but the Retinal Specialist are now scheduling appointments for 2013"
2013.
How could that possibly be? Some of the conditions that fall under Retinal Dystrophy can progress to blindness in 6 months.
If Parker is losing his vision we want to know so that we can pack everyday full of sights that he will never forget!
So again we wept and cried and prayed.
Two days later, I got a call from another lady from Dornbecker...
saying she looked at the schedule again and if we would be willing to do the visit in 3 seperate chunks she could get the testing done by July 9th!
So...next week will be a big one.
July 3rd Parker will go in for a comprehensive visual field test.
July 5th he will have an ERG (electroretinogram)
July 9th we will meet with the Retinal Specialist and a Genetic Counselor!
It is a scary road but we are SO thankful to be on our way at least to initial answers so quickly!
Thanks again for praying!!! Please keep it up!!!!
4 comments:
Praying and standing on God's promises with you! I have been singing an old hymn today...Standing On the Promises of GOd!! Written by a man so long ago who was very ill and read the BIBLE seeing for the first time GOd's promises for healing and he confessed those promises until his healing came...then wrote the hymn. I thought that was sooo cool. Wrappying your family in love and prayer. Renee and Joel
Praise the Lord for those openings at Doernbecher and the beginning of a road to some answers! I am so sorry that you guys are going through this...but will definitely stand alongside you in prayer for your sweet son, Parker.
Love and hugs to you and your precious family. ~Angie J.
I will pray for Parker, that the Lord would heal him. I will pray for you and the family, that God would bring His peace. I've shared this so that others can pray!
Hi!
Barbie alerted me to your prayer request. I too will be praying for Parker, 100% full restoration of his eye sight.
I have a prayer blog and if you don't mind, I would like to add Parker to the prayer page. Please let me know if this is okay with you. I have checked the email follow up comments so you can answer me here. Thanks!
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